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PARTNERSHIPS WITH PATIENT ORGANISATIONS

NexGen HC: Uniting the women’s health community to provide transformative education on uterine health issues

Activation of patient voice

average rating is 4.5 out of 5, based on 2 votes, Ratings

Behavioural change

average rating is 2 out of 5, based on 2 votes, Ratings

Collaboration

average rating is 4.5 out of 5, based on 2 votes, Ratings

Overall Impact

average rating is 3.5 out of 5, based on 2 votes, Ratings

Uterine health issues are misunderstood, under diagnosed and sub-optimally treated. To address this, NexGen HC collaborated with 18 patient organisations (and 4 medical organisations) to create a 'surround sound' online hub to crystallize lived experiences to improve education and facilitate shared decision-making.

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Acitivation of Patient Voice
Behavioural change
Collaboration
Overall Impact
Comments (4)

Olivia Kersey
Olivia Kersey
Admin
Nov 19, 2024

Fantastic to see such an underserved area of healthcare finally get some of the attention it so urgently needs.


It would be fab if education projects like this had some kind of 'impact predictor' by asking 'test users' to rate their confidence in taking an active role in their healthcare decisions before engaging with the educational materials and after, and perhaps also assess any changes in their health literacy. Feedback like this could be really valuable for optimising the value of the resources/platform further.


I'm also curious to know:


  • Which topics/facts were particularly useful or interesting for patients

  • What specific accessibility barriers were flagged regarding previously-existing resources and how these were addressed

  • What the sponsoring company is doing to ensure longevity / continued relevance of the educational platform

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Cathy Sertori
Nov 18, 2024

I like the fact that this study noted that it wasn't trying to reinvent materials, it was a matter of accessibility and not availability and that this project sought to create a space for these resources and elevate this via the hub, while continuing to educate pharma on the importance of multi stakeholder engagement.

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Emma Sutcliffe
Emma Sutcliffe
Admin
Nov 14, 2024

Wholeheartedly echo Michelle's comments here. This is an awesome exmple of collaboration and using social. media tools with gusto. The insight on accessibility is golden ... something that can be readily addressed. Can't wait to see what happens next with other WH challenges.

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Michelle Warner
Michelle Warner
Nov 14, 2024

Excellent example of partnering effectiveness with a high number of engaged stakeholders, and interesting to learn that it is accessibility rather than availability of disease education which was the key gap. It would be even more impressive with the inclusion of behaviour change / metrics on patients inspired to self-advocate and share in the decisions around their management.

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