Current version effective as of 29 October 2025.

The ISPEP Hub is a professional community platform designed to connect members,
share knowledge, and strengthen the discipline of Patient Engagement (PE). By
joining and using the Hub, you agree to the following Terms.

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1. Community Culture
 

• From day one, the ISPEP Hub has been intentionally designed to cultivate a culture of inclusivity, empathy, and professional peer support.

• We believe every member deserves to feel welcome and respected, regardless of their background, experience, or perspective.

• This foundation of trust and openness shapes how members interact and ensure that the Hub remains a safe space for learning, sharing, and collaboration.

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2. Purpose of the Hub
 

• Provide a safe, respectful, and inclusive space for members.

• Support knowledge exchange, learning, and collaboration in patient engagement.

• Uphold ISPEP’s not-for-profit mission of advancing professional standards in patient engagement globally.

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3. Membership and Access
 

• Access to the full Hub (e.g., including areas such as the Discussion Area, Voice to Value Zone, and Resources) is for registered ISPEP members only.

• Your login credentials are personal; sharing access is not permitted.

• ISPEP may suspend or revoke access if these Terms are breached.

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4. Member Conduct

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You agree to:
 

• Be respectful and professional – treat all members with courtesy, no harassment, discrimination, or defamatory behaviour. Challenge kindly.

• Protect confidentiality – do not share private member discussions or identifiable information without explicit consent.

• Contribute constructively – share experience and knowledge to support collective learning.

• Avoid misinformation – ensure posts are accurate, transparent, and appropriately sourced where relevant.

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5. Non-Solicitation and Non-Promotion

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• The Hub is a non-commercial space. No advertising, promotional messaging, or solicitation of members for products, services, fundraising, or business purposes is allowed.

• Sharing resources or opportunities is welcome only where directly relevant to patient engagement practice and not self-serving.

• Any conflict of interest must be declared.

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6. Privacy, Data Use, and Cookies

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• ISPEP processes any personal data in accordance with our privacy policy: https://www.ispephub.org/privacy-policy

• We collect only the information necessary to administer membership and enable professional interaction.

• Your profile (which may include your name, organisation, role, geography) is collected but may not be visible to other members.

• You retain ownership of the content you contribute, but grant ISPEP a continuous, non-exclusive licence to host, display, store, and archive it within the Hub.

• Deleted content will be removed from the Hub, though ISPEP may retain backup or archived copies for compliance or legal reasons.

• Do not post sensitive personal health information or confidential third-party data.

• ISPEP uses cookies and similar technologies, as described in the Privacy Policy, to enable functionality, analytics, and user experience.

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7. Intellectual Property

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• ISPEP materials (frameworks, templates, resources) remain the property of ISPEP and may not be reproduced or distributed outside the Hub without written consent.

• Member contributions remain the property of the author but are licensed to ISPEP as set out above.

• Content you post must have rights to share it.

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8. Communications
 

• By joining the Hub, you agree to receive ISPEP communications such as event notices and community updates. You may opt out at any time via email to contact@ispephub.org.

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9. Moderation

 

• The Hub is supported by human moderators who guide discussions and may remove inappropriate content/ posts or suspend accounts where Terms are violated.

• ISPEP may suspend access for violations of these Terms and persistent breaches may result in termination of membership access.

• Upon termination, ISPEP may retain personal data and contributions where required by law or compliance, while other content may be deleted or anonymised in line with the Privacy Policy.

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10. Disclaimer

 

•  Content in the Hub is for professional networking and knowledge sharing, not medical, legal, or regulatory advice.

• Members are responsible for validating information before applying it in practice.

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