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Articles and Podcasts
We regularly post informative material to help spread the word about the importance of patient engagement.
Use the filter on the right of the page to explore specific categories, which are defined as follows:
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PEP Talks Podcast – interviews with patient engagement professionals
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Member Exclusives – content available to paid Hub members only
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Community Voices – articles kindly provided by ISPEPers around the world
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ISPEP Announcements – key news from the society team
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ISPEP Voice – hear our team's perspectives on patient engagement topics
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Event Highlights – summaries of conferences, summits etc.
Once you've chosen a category, make sure to scroll past our featured posts to see a list of all posts in your category of choice.
Thank you to all the ISPEPers who have kindly submitted articles or been interviewed for our podcast!
Categories
Featured (Top Posts)
NEW RESEARCH REPORT: Introducing the 'EACH' framework for patient-first trial recruitment
We are delighted to share our new report, “The EACH framework for clinical trials: a patient-first, digital delivery model for recruitment”, produced in collaboration with Evinova.
Patient recruitment to clinical trials is a notoriously leaky pipeline. Challenges here cost the industry millions or even billions in lost revenue, stall the advancement of medical science, and fuel disparities in health equity. Noting the need for a fundamental paradigm shift to overcome these
ISPEP
Jun 121 min read
Culturally Competent Patient Engagement: From Theory to Practice
This blog post explores frameworks for equitable involvement, highlights successful initiatives, and outlines actionable steps for patient engagement professionals to help close the gaps opened by homogenous engagement.
Nadia Malliou
Jan 225 min read
The participation equation: Understanding what drives participant engagement in clinical trials
We are excited to share our new report, produced in collaboration with Cuttsy and Cuttsy. Reflecting the voices of over 700 recent clinical trial participants, alongside in-depth interviews and input from leading sponsors, these findings shed light on both the challenges and opportunities in today’s complex clinical trial landscape.
ISPEP
Oct 16, 20251 min read
Change Champions — Carrying the Change Together
As we mark International Patient Engagement Day 2025, I feel both proud and deeply inspired to reflect on the extraordinary journey of our community at the International Society for Patient Engagement Professionals (ISPEP). This year’s theme, “Carry the Change”, perfectly captures the spirit of our global network. Around the world, patient engagement professionals are not only driving transformation within their own organisations and communities, they are carrying that change
Emma Sutcliffe
Oct 15, 20253 min read
ISPEP publish PEP Talks Words of Wisdom — free to download now on the ISPEP Hub
In honour of International Patient Engagement Day 2025, we’re proud to release a special resource for our community: the PEP Talks Words of Wisdom e-book, showcasing highlights from our popular podcast.
ISPEP
Oct 14, 20251 min read
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PEP Talks: Persuasive Petersen making a lasting impact for patients at every stage of product development
Special guest: Dr. Gudula Petersen, Global Patient Engagement Lead at Grünenthal Group In this insightful conversation, Dr. Petersen talks about the strategies and challenges of amplifying the patient voice within large organisations. She shares her expertise in uniting diverse stakeholders, navigating compliance landscapes, and ensuring that patient perspectives are at the forefront of product development. Her approach not only enhances patient outcomes but also enriches the
ISPEP
Mar 9, 20251 min read
PEP Talks: Overcoming Inertia with Paul Simms
Special guest: Paul Simms, Impatient Health This PEP Talks episode features an engaging conversation between Emma and Paul Simms, founder and chief executive of Impatient Health. Sponsored by Norgine, the discussion delves into the challenges and frustrations of patient engagement in the pharmaceutical industry. Paul shares his journey and the motivation behind founding Impatient, emphasising the need for a culture of continuous experimentation and adaptation in pharma. Spons
ISPEP
Mar 9, 20251 min read
PEP Talks: How an “accidental advocate” is re-writing the communications rules for patients
Special guest: Monica Kleijn Evason, Communications Coach and Advocate In this episode, Monica shares her advocacy journey, prompted by her son's brain tumour diagnosis and their struggles with the medical system. She stresses the importance of communication and empathy in healthcare, especially for young survivors post-treatment. Sponsored by
ISPEP
Feb 17, 20251 min read
Driven by empathy, fuelled by business: How ISPEP supports all patient professionals
Special guest: Emma Sutcliffe, Chief Patient Officer, ISPEP In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPEP, about her new role as Chief Patient Officer. Emma shares her journey from a medical biochemist to a patient engagement professional, emphasising the importance of empathy and strategic business practices in the pharmaceutical industry. Sponsored by
ISPEP
Feb 17, 20251 min read
PEP Talks: How being an 'outsider' brings emotional resonance to the science of patient engagement
Special guest: Rasmus Hjorth, Head of Communication at James Lind Care In this episode, Emma interviews Rasmus Hjorth, Head of Communication at James Lind Care, a clinical trial research organisation. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasising the need for increased awareness, education, and simplified communication. Sponsored by
ISPEP
Feb 17, 20251 min read
PEP Talks Episode 7: Core skill sets for honest and empathic patient engagement
Special guest: Steve Clark, Strive for Five In this episode of PEP Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psychosocial model of care. Steve emphasizes the power of positivity and the importance of
ISPEP
Nov 18, 20241 min read
PEP Talks Episode 6: Fighting for patients in every way
Special guest: Stacy Hurt, Chief Patient Officer, Parexel Stacy Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talks podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacy brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical trials, advocating for the inclusion of patient voices to improve trial de
ISPEP
Nov 18, 20241 min read
PEP Talks Episode 5: From Scientist to Strategist
Special guest: Victoria Harvey-Jones, Medscape In this PEP Talk we hear from multi-academic-award-winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications. Patient centricity to integration: enhancing cancer outcomes – t o drive improvements in patient outcomes, it's vita
ISPEP
Nov 18, 20241 min read
PEP Talks: From Photographer to Professor
Special guest: Professor Lara Bloom, President and CEO of the Ehlers-Danlos Society Sponsored by
ISPEP
Oct 30, 20241 min read
PEP Talks: Being a Chief Patient Officer and building a patient engagement infrastructure
Special guest: Liselotte Hyveled, Chief Patient Officer at Novo Nordisk Sponsored by
ISPEP
Oct 30, 20241 min read
PEP Talks: ESMO and evidence-based advocacy
Special guest: Rachel Giles, Associate Professor of Internal Medicine and President of VHL Europa Sponsored by
ISPEP
Oct 30, 20241 min read
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