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Hot off the press! The participation equation: Understanding what drives participant engagement in clinical trials

  • Writer: ISPEP
    ISPEP
  • 3 days ago
  • 1 min read
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We are excited to share our new report, “The participation equation: Understanding what drives participant engagement in clinical trials”, produced in collaboration with Cuttsy and Cuttsy.


This research reflects the voices of over 700 recent clinical trial participants, alongside in-depth interviews and input from leading sponsors. The findings shed light on both the challenges and opportunities in today’s complex clinical trial landscape.


“This report brings forward the experiences of patients who have recently participated in modern trials reflective of today’s research landscape and the growing complexity in the trials landscape” says Alexandra Charge, CEO and Co-Founder of ISPEP. “Their insights go beyond ‘what happened’ to reveal ‘why it mattered’, highlighting where trial processes supported them and where gaps remain.”


The research provides actionable insights for the industry, offering credible evidence sources that are aligned with participant preferences to support and improve recruitment, retention, and data quality. By understanding how participants weigh burdens against benefits and what support they truly need, sponsors can move from patient-informed trials to truly patient-ready ones. The report is a call to action for the clinical research community to operationalise patient preference into trial design and delivery.




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